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added: Fri, 27th October 2006 | 250 views | 0x in favourites
feed url: http://feeds.feedburner.com/LifeWithMs
Life with MS - A personal take on multiple sclerosis.
I’m back from our annual Big Kid’s Camp and feel rested (a bit) and ready to power through the rest of the year (mostly). Yes, Rusty. The Superman underpants stayed at home (at least in my opinion) for the trip. There are so many things I want us to discuss in upcoming posts. [...]
Well, folks I’ve been off at Big Kids Camp this week and weekend. In other words, I’m on vacation! I have to be honest and say that I really need this break, and I’m having a great time. I’ll check in next week to see how everyone here at Life with MS is doing. [...]
First let me say that I’m sorry for not being in touch for about a week now. Between my schedule and some (really fun and exciting) things happening at HealthTalk, you haven’t seen a post from me in a while. I knew it was bad when my father called to check on [...]
By far our most popular, serial blog post; “How’s your MS today?” Each month I pose this question and many of you respond. I love the way that you use this opportunity post to contact one another, pose your own questions and suggest topics for further blogs. It has become a favorite of mine [...]
This past week, Biogen Idec and Elan Pharmaceuticals, reported to their respective regulatory agencies that two new cases of progressive multifocal leukoencephalopathy (PML) were conclusively diagnosed in European MS patients who were undergoing Tysabri (natalizumab) mono-therapy for multiple sclerosis. The details of the reports are somewhat vague. Extensive procedures taking approximately two months for each [...]
I know we’re supposed to be finishing our book this month, but I’m changing the plan. In re-reading chapter 20 our book of current discussion, “Notes from a Minor Key,” coupled with my recent rehash of my own MS diagnosis, I just felt like this chapter might be an important one to discuss in [...]
I like to think of the Life with MS blog as an informational resource, a shoulder to cry upon and an outlet for every emotion under the MS sun. In my opinion, all of your comments are a well of experiences which I seem to dip into often. Today I am going back to the [...]
When we find the need or ability to go back to work with MS, many are frightened at the thought of losing all of the hard-earned disability benefits. Who could blame us when it can sometimes be such a difficult task to be deemed worthy by “the system.” Yesterday, before our monthly HealthTalk MS webcast [...]
Snowflake to snowball in three months - we’re quite the community here at Life with MS! In April, after a meeting with a friend at our local National MS Society “Walk MS” event I posted my thoughts on “MS survivor guilt.” Your comments took the subject on a bit of a ramble and the editorial [...]
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